August CCMS Conference in Des Moines

Once again I want to thank Jackie the committee for inviting Dena and I back to Iowa for the 2011 CCMS Conference. This was a nice size conference, not to big that you are not over whelmed by topics, but diverse enough to peek everyone’s interests. I still love the idea of presenting last. By that time I have a good vibe for the group and can gear my talk towards their goals.

I asked Jackie if this was our audition for hosting the Oscars. Since we did two back to back sessions for 1 and a ½ hours each, it was a challenge not to repeat our selves, but think Dena and I did a good job.

After the presentations, a mother of an autistic child come up to me and said thank you for explain your choice not using an ACC device. She said they tried using a device for communication, the mother notice that her child stopped communicating when not speaking for their selves. So they ditched the device, I always say parents know best for their children.

Sometimes The Crown Grow Thorns

Tuesday we went with our friend to meet with his service coordinator to express how he and we felt about the support he has been getting. The whole day our friend complained how his stomach hurt and wanted to go head to the ER.

Before we went, we called the support broker and nurse, they both said this is not an emergency and do not go to the ER. It is just how our friend is looking for attention.

When we got to the ER our friend had wounds on his stomach that were filled with yellow puss. The doctor gave him a top shelf IV anti-biotic and more to take for week.

Friday we receive an email from his support broke saying they will be filing a complaint against Dena and me for being a bad influence on his life. In addition they are taking legal action for stealing confidential information. Everyone at this agency has a superior complex, no body is always right.

Yes, I did not sleep Friday night not because I was scare, but from being frustrated and I piss off. I used to be good friends with members that work at this agency. I know if the tables were turned, they would do the same things to advocate for their friends.

I welcome an investigation; we have not done anything wrong or without our friend’s permission. If I could say one more thing to this agency, please proceed as they see fit. I will do what I have to protect my family and myself.

Maybe I should not be writing this blog for they can use it against me. I wonder if they will use my pasts Facebook postings. Then they would see how other think too. If this happen to most people, they would stop advocating for others. Not I, I hate seeing injustice being served!!!!!

30 Days Would Be A Piece of Cake

I realize that times are tough for a lot of people, but I wonder how many people could live as a person with a disability. For example in MD the income from SSI is Just over $700, that has to pay for housing, utilities and food. For example how many people could buy a week worth of food on a budget of $60?

Back in my single day I would receive about $640. a month, I paid $110 for rent, $140 for food a month plus electric and phone/internet. Some how I always had a $100 to play with each month.

Most people would say go get a job, but do they know that it would only hurt a disabled person. If I, or another person would get another source of income that only defeat the objective. The more income one makes, service would decrease, or even be cut off. That would include insurance and housing cost would go up. Talk about a dog chancing his tail.

An Invitation of Disability Parking Abuse

Last Saturday Wifey and I went to McDonalds in New Town for lunch with her Cousin and new client. The disabled parking is a straight shot from the parking lot entrance; this is convant if you are disabled. But is an absolute invitation of abuse for the lazy and ignorant. To add more of a temptation there is a Red Box two-steps from the disabled parking.

During our 30 minutes lunch at least 15 people pulled into the disable parking to use Red Box. Wifey went out two times to talk to people about using the parking space, we always hear its just two minutes. I always wanted to ask if I could kiss them for 2 minutes. This is Wifey’s pet peeve; I say call the police before we get mad. You never know what people would do now.

The third time Wifey went out, she took me. When I get piss, I do act like an animal just compare it to the incredible hulk. While we were waiting for the police I was yelling at all. I used my chair to block one person from driving off, one lady called us vigilantes.

Everyone says they want to stay a talk to the police too, but they always take off. That only tells me, they do not have any belief in their own words. While talking with the police officer another lady comes up and identified her self as a social worker. She said my wifey let me roll in the street as a human blockade. If she was really doing her job, I would think she would have came out sooner to see why I was so upset?

I was told I could go to jail for my action, it would be one hell of a cause to be locked up for. Plus it would be another thing to check off my bucket list.

Disabled people want their rights, but not the responsibilities that come with it.

It is very interesting that I have heard this phrase twice this month and never before. Two different people said this on two different occasions. The first person, is a service coordinator that is deaf her self. The second person is a great disabilities advocate, which has C.P. him self.

I hope they are not trying to tell me that I have been slacking on my King Gimp duties. I would like to think that I have been holding up on my end of the deal. Even thou at times my crown becomes thorny, I do want can to obtain the answers. When I don’t I seek them out, or point in right direction to find the right wizard.

A visit to a 4th Grade class.

As always everything went wonderful at McDonogh yesterday. When talking with 4th graders, I think it’s important to let them know. It’s ok to be yourself and life is More interesting when you have friends that a bit different from their self.
After spending an hour with the students we like to see how well they can understand me. I left them with this sentence: Everyone can contribute to life. %90 of the students had no problem putting that together.

Time Always Wins

For a few months now Dena and I have saying we need to get a new dishwasher before this one goes up. Well the alarm just went off, Monday I notice a bubble starting on the ceiling in the location of the dishwasher in the kitchen. I email Tom from Peli Construction because he said now his mission to make the house last. That really makes me emotional, he was sent here for a bathroom job and now is my go to guy. Tom had one of his guys stop by a few days later and confirm my thoughts. The sink is dry underneath, so it must be the dishwasher. We caught in time, because it might only dripping for now and could get worse. Wifey might be happy now that my head does look around like a bird.