Letter To Wifey After trip to CA Home

Dear Bicht,

Thank you for wonderful trip, just why did it take so long to do this. It was not our usual vacation, but I knew what I was getting into. This was a trip about introducing your family and friends to the man you want to spend the rest of your life with.

We had a lot of laughs with everyone from your hometown. I am still confused about witch town you are really from. Along with the laughs, come as many tears from long talks around the kitchen table with your dad.  To be honest that is what I was expecting on this journey and look forward to doing again soon.

Even though we did not have much time as a c couple, we did made best of time we did have.  As for our M O we made a 4-hour drive into an all day drive, but enjoyed it.  I was sitting in our hotel room on the last morning and kept thinking too bad this is not ground hog’s day, because I would the last weeks all over again.

I love you!!!!!!!!!!

Yes, It finally happened me on back of a bike and no strings!!

We stopped back by wifey friend’s Ed house; on the way to the airport, she told Ed it was on my bucket list to ride a bike.  He was more then happy to make that happen, the whole time heading to his family’s I’m thinking how are we going to keep my ass on it.

Wifey and I pull up to their house and the bike is sitting there waiting.  Wifey is having second thoughts, but honey it was your idea. So we go into the house to visit for a while, then the time comes. It was a bit hard getting me on the bike. Once I got in a position and good hold of Ed, I was amazingly still.  Maybe I was so focus on hold to Ed that I forgot that I am spastic CP. The other odd thing was that I was holding on so tight that my arms and legs hurt, but the rest of my body was relaxed.

Sure it just around the block, but to me it like that ride to Vegas. Thank you Ed!!!!

A Very Bi-Pallor Day

Sunday was 9/11, but it was also the Ravens season opener.
Michael, Wifey and I took Fizz Caps tailgating, of course we got a later start then we wanted. The whole day turned out to be a day of timing.

By the time we were turning off of 83 in Baltimore it was 9:02, if we were not stopped the light. We would not have heard the bell chiming all around the city.  If was fitting that the day started out with over cast skies to make you reflect on the events of tens years ago.

Last year when we took Fizz Caps tailgating we kept going to the same lot, it was out of the way. So we decided to drive around and check out other parking options. Although, it was exciting seeing the sea of purple you still reflect on what this day is really about, coming together as a nation.  We were drive down one street and see a lot of people waving for parking spaces.

We find the perfect spot between two houses, paid $30 for the space and $10 to set up our tent.  As soon as we popped our tent, another guy comes saying this is his space and will have all these cars towed.  The first guy we paid was a squatter, so after working things out with the owner. We could stay, but would have paid another $40. Talk about a pre-game!

The wife of the couple that ran the parking across the street notice our situation and said they still had spaces and could setup our booth.  They both knew who we were, the husband works for Social Sec. as a photographer and heard wifey and I speak at a luncheon and shared our store with his wife. Thanks Raven Roost 50  for letting us crash your party and the lot was really rocking.

Even through we were not close to the stadium, we were in the path of the jet fly over.  I had the chill and goose bumps at the same time, if possible?

As we hit 695 on the way to Michael’s, we rode with a group of bikers, riding for 9/11. As we drove close to the Dulaney Valley Bridge, there was a flag hanging from two fire trunks.  The tears just began to flow.

August CCMS Conference in Des Moines

Once again I want to thank Jackie the committee for inviting Dena and I back to Iowa for the 2011 CCMS Conference. This was a nice size conference, not to big that you are not over whelmed by topics, but diverse enough to peek everyone’s interests. I still love the idea of presenting last. By that time I have a good vibe for the group and can gear my talk towards their goals.

I asked Jackie if this was our audition for hosting the Oscars. Since we did two back to back sessions for 1 and a ½ hours each, it was a challenge not to repeat our selves, but think Dena and I did a good job.

After the presentations, a mother of an autistic child come up to me and said thank you for explain your choice not using an ACC device. She said they tried using a device for communication, the mother notice that her child stopped communicating when not speaking for their selves. So they ditched the device, I always say parents know best for their children.

Sometimes The Crown Grow Thorns

Tuesday we went with our friend to meet with his service coordinator to express how he and we felt about the support he has been getting. The whole day our friend complained how his stomach hurt and wanted to go head to the ER.

Before we went, we called the support broker and nurse, they both said this is not an emergency and do not go to the ER. It is just how our friend is looking for attention.

When we got to the ER our friend had wounds on his stomach that were filled with yellow puss. The doctor gave him a top shelf IV anti-biotic and more to take for week.

Friday we receive an email from his support broke saying they will be filing a complaint against Dena and me for being a bad influence on his life. In addition they are taking legal action for stealing confidential information. Everyone at this agency has a superior complex, no body is always right.

Yes, I did not sleep Friday night not because I was scare, but from being frustrated and I piss off. I used to be good friends with members that work at this agency. I know if the tables were turned, they would do the same things to advocate for their friends.

I welcome an investigation; we have not done anything wrong or without our friend’s permission. If I could say one more thing to this agency, please proceed as they see fit. I will do what I have to protect my family and myself.

Maybe I should not be writing this blog for they can use it against me. I wonder if they will use my pasts Facebook postings. Then they would see how other think too. If this happen to most people, they would stop advocating for others. Not I, I hate seeing injustice being served!!!!!

30 Days Would Be A Piece of Cake

I realize that times are tough for a lot of people, but I wonder how many people could live as a person with a disability. For example in MD the income from SSI is Just over $700, that has to pay for housing, utilities and food. For example how many people could buy a week worth of food on a budget of $60?

Back in my single day I would receive about $640. a month, I paid $110 for rent, $140 for food a month plus electric and phone/internet. Some how I always had a $100 to play with each month.

Most people would say go get a job, but do they know that it would only hurt a disabled person. If I, or another person would get another source of income that only defeat the objective. The more income one makes, service would decrease, or even be cut off. That would include insurance and housing cost would go up. Talk about a dog chancing his tail.

An Invitation of Disability Parking Abuse

Last Saturday Wifey and I went to McDonalds in New Town for lunch with her Cousin and new client. The disabled parking is a straight shot from the parking lot entrance; this is convant if you are disabled. But is an absolute invitation of abuse for the lazy and ignorant. To add more of a temptation there is a Red Box two-steps from the disabled parking.

During our 30 minutes lunch at least 15 people pulled into the disable parking to use Red Box. Wifey went out two times to talk to people about using the parking space, we always hear its just two minutes. I always wanted to ask if I could kiss them for 2 minutes. This is Wifey’s pet peeve; I say call the police before we get mad. You never know what people would do now.

The third time Wifey went out, she took me. When I get piss, I do act like an animal just compare it to the incredible hulk. While we were waiting for the police I was yelling at all. I used my chair to block one person from driving off, one lady called us vigilantes.

Everyone says they want to stay a talk to the police too, but they always take off. That only tells me, they do not have any belief in their own words. While talking with the police officer another lady comes up and identified her self as a social worker. She said my wifey let me roll in the street as a human blockade. If she was really doing her job, I would think she would have came out sooner to see why I was so upset?

I was told I could go to jail for my action, it would be one hell of a cause to be locked up for. Plus it would be another thing to check off my bucket list.