#Ableism #InspirationalPorn #JustSayHi, I'll take the latter

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I think this campaign is about getting seen as a person. When I am out n' about, I say hi to everyone so they know I do see them.

To me this campaign is easier to figure out compare to the Ableism and Inspirational Porn ones. Truly, I still cannot understand what the hell Ableism is and I am not the only one. It would be easy for someone to call me the King of Inspirational Porn, just by posting a picture of me working in my studio. That is how open I feel these definitions are.

Just because I do not use these words now does not make them bad. I think there will always be different tactics in the disability movement, in the end they all work together. I will always be the hippy Artist, so #JustSayHi!

For the record I am closed friends with Richard Ellenson and family.

Damn CP Crip!

When I go shopping with Wifey, or someone we look like a train because I hold onto the back of the cart and the person can pull us both. Today Wifey and I went shopping for snackage and beverages for the studio. On our way out of the store, my front wheel of my chair got stuck in the sidewalk crack, but Wifey kept going and I could not let go! So my ass took a dive in slow motion. That is the thing about knowing how to fall and not fighting it, you just end up with a scratch or two. This way you can just bounce back up from it before people can start flipping out.

It is crazy how people still think making property accessible devalues there property even when its for another one’s home! ‪ once we lived at an appartment complex and wanted to take out the the and do a roll in shower. They said we could do it, but when we moved we had to put the shower back. idiots!!!

via  CerebralPalsy.org-  Vincent and Heidi Giesegh, the parents of a 16-year-old daughter that has spastic #CerebralPalsy built an accessible ramp to their front door and widened their driveway to accommodate their child’s needs. However, their efforts have placed them in the middle of a neighborhood spat. The family and the community builder are receiving complaints from Giesegh’s neighbors stating that the Giesegh’s ramp hurts the value of the homes in the neighborhood, even though the construction was approved by the City of Fountain, Colorado. “I mean we’re trying to do our best to assist our daughter with her daily needs to get in and out of the house,” said Vincent. “As she goes into her spastic modes, we could just tumble down the stairs and both of us could get massively hurt,” said Heidi, about the ability to access the home without a ramp. What do you think should be done to calm this situation?

My Reaction to: Don't Hate The Cure, Hate the Haters! @theseed9811

 I think it comes down to the quality of life. Some parents might want their children to have the same changes in life as they did and this can not be achieved while their child is disabled. I have been asked many time about the "Magic Pill" of I have always said hell no! I have three degree, live life as an Artist, have lovely wife and daughter. Not to say I been to the Oscar's and get to travel all over sharing my story. How many other able body people get to do that?

I do get nervous and sad when I about parents putting their kids through a experimental surgery, or treatment when it causes them pain and time from living life. For example, when I at Ridge school there were kids that missed school months at a time due to surgery to have there hamstrings cut. In order to have their legs be able to stand flat footed and most of the time it did not work. So was it worth them missing out on school and the social aspect for this surgery.

in recent years people have been doing experimental treatment with Botox. Lets think about this, they putting poison into one's body to relax/tighten muscles. None of this is permanent, so every few months you need another shot.

Why not use the same time, energy and funds to make their environment more accessible for their lives? To me that would seem more beneficial and for all. I just all of the money being spent on "Medicine" When it could use for long lasting accessibility!

http://theseed9811.blogspot.com/2013/08/dont-hate-cure-hate-haters.html

National Cerebral Palsy Awareness Day 2013

It is official! March 25th 2013 has been designated by the US Congress as National Cerebral Palsy Awareness Day. Thanks to Cynthia Frisina Gray, co-founder of the Reaching For The Stars Foundation for her unrelenting efforts to see this through!

I think this is a good start for bigger things to come and it might make people  more aware of people with disabilities, but what does it really mean? Would it make C.P.ers feel better to be recognize as part of society for just one day of a year?  I would rather be seen as a person just as everyone else in the everyday world, because I think that I and many others C.P.ers take part in society on a daily bases.

Here I go again, having one of gimp world images.  Maybe in the near future, National Cerebral Palsy Awareness Day could be celebrated with ceremony that would recognize  the accomplishments of both C.P.ers and non-C.P.ers for their contributions in Cerebral Palsy community.