Having a Disability is hard for the whole family...

Source

Having a Disability is hard for the whole family, nobody has all of the answers even those who think they better. I know parenting is not a friendship, but at the right age the parent and child need to work together to see if they are taking the right path. They need to support each other in the failures and their successes. In addition, this will help the child gain their independence a learn how to network.

My Reaction to: Don't Hate The Cure, Hate the Haters! @theseed9811

 I think it comes down to the quality of life. Some parents might want their children to have the same changes in life as they did and this can not be achieved while their child is disabled. I have been asked many time about the "Magic Pill" of I have always said hell no! I have three degree, live life as an Artist, have lovely wife and daughter. Not to say I been to the Oscar's and get to travel all over sharing my story. How many other able body people get to do that?

I do get nervous and sad when I about parents putting their kids through a experimental surgery, or treatment when it causes them pain and time from living life. For example, when I at Ridge school there were kids that missed school months at a time due to surgery to have there hamstrings cut. In order to have their legs be able to stand flat footed and most of the time it did not work. So was it worth them missing out on school and the social aspect for this surgery.

in recent years people have been doing experimental treatment with Botox. Lets think about this, they putting poison into one's body to relax/tighten muscles. None of this is permanent, so every few months you need another shot.

Why not use the same time, energy and funds to make their environment more accessible for their lives? To me that would seem more beneficial and for all. I just all of the money being spent on "Medicine" When it could use for long lasting accessibility!

http://theseed9811.blogspot.com/2013/08/dont-hate-cure-hate-haters.html

Trust Worthily, Brave, Loyalty…

I feel as if disabled people need to develop a sixth sense, because we need to trust people so much.  There has been cases where PCA have stole disabled people income, but it would be so simple for a “friend”, or “PCA” to take one’s identity.

Trust and being able to read people needs to developed at an early age. I know what I am saying goes against parents’ and families’ instinct to protect their disabled child, at the same time they need to be prepared for the real world. When I was in high school Mrs. G., my assistant, said I do not have much privacy since I always asked her to go into my wallet.

There might be a connection between being able to capture people’s emotions in paintings and knowing how to trust people. Over the years, I have given myself credit that I could count my best friends’ one my hands. Those friends are also my networks of support, I can look towards these people to help me with any problem but in return they know things about my life that most people only share with their partner’s.

What I am saying this sixth sense to read people is really a gift. Not only from a money viewpoint, but more importantly for one’s emotional being and this talent of trusting needs to start early in life.

Family Man

We are taking a family vacation this summer. Of course being the artistic, hippy type we need to be different. That just makes it hard to find a place that fit all of our needs, to be a family and have accessibility.
We want to go stay at a cabin in the smoky mountains. It is not a problem finding a cabin that would fit all of us, but non that are accessible. The cabins that are accessible would only have one bedroom.
Now that I look it up again, I found accessible cabins with multi-bed room in the same price range. At least I will know for next time.
http://www.awesomemountainvacations.com/cabins.htm
http://gatlinburgcabins4u.com/98/handicap-accessible-gatlinburg-cabins/