It is crazy how people still think making property accessible devalues there property even when its for another one’s home! once we lived at an appartment complex and wanted to take out the the and do a roll in shower. They said we could do it, but when we moved we had to put the shower back. idiots!!!
via CerebralPalsy.org- Vincent and Heidi Giesegh, the parents of a 16-year-old daughter that has spastic #CerebralPalsy built an accessible ramp to their front door and widened their driveway to accommodate their child’s needs. However, their efforts have placed them in the middle of a neighborhood spat. The family and the community builder are receiving complaints from Giesegh’s neighbors stating that the Giesegh’s ramp hurts the value of the homes in the neighborhood, even though the construction was approved by the City of Fountain, Colorado. “I mean we’re trying to do our best to assist our daughter with her daily needs to get in and out of the house,” said Vincent. “As she goes into her spastic modes, we could just tumble down the stairs and both of us could get massively hurt,” said Heidi, about the ability to access the home without a ramp. What do you think should be done to calm this situation?
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I think it comes down to the quality of life. Some parents might want their children to have the same changes in life as they did and this can not be achieved while their child is disabled. I have been asked many time about the "Magic Pill" of I have always said hell no! I have three degree, live life as an Artist, have lovely wife and daughter. Not to say I been to the Oscar's and get to travel all over sharing my story. How many other able body people get to do that?
I do get nervous and sad when I about parents putting their kids through a experimental surgery, or treatment when it causes them pain and time from living life. For example, when I at Ridge school there were kids that missed school months at a time due to surgery to have there hamstrings cut. In order to have their legs be able to stand flat footed and most of the time it did not work. So was it worth them missing out on school and the social aspect for this surgery.
in recent years people have been doing experimental treatment with Botox. Lets think about this, they putting poison into one's body to relax/tighten muscles. None of this is permanent, so every few months you need another shot.
Why not use the same time, energy and funds to make their environment more accessible for their lives? To me that would seem more beneficial and for all. I just all of the money being spent on "Medicine" When it could use for long lasting accessibility!
This was a multi leg road trip that was a mix of pleasure a business. In 11 days Wifey and I traveled 5000 miles and 13 states and it was worth it.
This was at the end of the first leg of our travel. I was invited to Galveston TX, to talk was a class of O.T. student at UTMB. It only took us two days to get there, so sadly we did not get to stop in @PigeonForge. We love the flea market there, after a 2 day drive finally got to our hotel in TX. It was so worth it and had the whole next days to relax and spend time with each other. At the gig I found out that it was the last of class for the 2013 class of students. Maybe this why it was hard to get the Q&A started. This time I had an easy ice breaker. I asked, if you go to college at the beach, where do you go for Spring Break? That just set tone for the rest of the conversation.
After the engagement we went with few of the professors and students to the "The Original". I was told this was the birth place of the Margarita. A movie star asked the bar tender for a drink that is sweet and salty.
Of course during our drive we observed many of these, it seems like we do most of our traveling later in the day. The only draw back to that is that we had to keep the hotel to let them know we will be having a late check. One time I book a room with those value hotels, I only did that once. when we did get the place, no one was there to check us into our room.
But the best sunset had to be this one:
One night as we were driving, it was like someone put together a playlist for us. Every song that come on the radio fit us the T, here are the songs in order.
People In Sky Once In A Lifetime - Talking Heads
Some song about sunset
The only song missing was David Bowie - Heroes
#heyjack as soon as you hit Alabama these duck fellows have merchandise all over the place. #heyjack the only thing I want is this cup for my real jack. You got that jack?
While we were ending our stay in TX. Wifey and I decided to go onto New Orleans since it was only a six hour drive. Who know when the next time we would be this close will be? Before we even left TX, we got our Bourbon to drink on Bourbon street. Driving into the city we drive right pass the Super Dome still lit up in purple. We finally made it, only 6 months later thou! Our hotel was right on Canal Street, it turned out to be a great location to explore from. We got settle, started to do laundry and had a few drinks so the exploring had to wait until the next day.
I was really amazed at how accessible Canal Street was, all side walks had ramps. Even more impressive was that, I did not have to bump up any store steps and if the store did have a step there was always a ramp. I really did not aspect to find this in such an old city. I wonder if this was part or the rebuilding effort after hurricane Katrina?
The next day Wifey and I had a whole day to explore New Orleans. This happened after we made our way down Canal Street, of course we took full advantage of the open battle rule. After we got our Maker's Mark it started to rain, so we went to the casino and broke even while we had a few cocktails. Then went to take fairy ride, but had a half hour to wait so we ended up finding this for me to ride. It was so FRICK'N AWESOME!!!!
I am a bit surprise the operator do not give us much trouble about me being able to do this. Maybe they if Drunk people can do this, why can't a disable person be able to Try? After I was done my ride, we heard a band playing down by the River side. We met up with another cool couple that was from out of town. The four of us spent the afternoon and night listening, dancing, and drinking to the band watching the huge ships go by while we were enjoying life. I hate to report that we did not even see Bourbon Street, but that just gives us another reason to return to New Orleans!
There is last adventure to talk about from our road trip, on our way out of Louisiana some how Wifey and I got the idea to take an air boat ride. This totally out of the blue and come as a give from a stranger. While we were in New Orleans listening to the band, a gentleman sent over a hundred dollars to our table and picked up our tab. I think he would happy to know we used the money for an adventure then food, or drink.
So we pulled of the highway and follow the signs to a gator park, where they also do rides. We had a half hour before the next ride and started to look at the gator. Wifey was excited and scared at the time especially when we had to walk down the bridge that was fenced in on both sides and gator could swim under. I said this is like Indiana Jones, but nobody is going to cut the rope bridge. It a cool ride, the boat guide kept trying to go fast, but the water was too high. The boat guide also kept stopping to call gators over to the boat and feed them marshmallows. He also said, the last season of Gator Boys was shot at this park. It was a great way to end our trip and a better way to spend the gentleman's gift.
I really liked this service, because one could use it through an IM app. That way I could type the basic information I knew that I need to say, then I could cut and paste as needed. To me this speed up the process for all.
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I know there are tons of groups to #advocate for PWD as individual, but who advocates when one, or both of a #disability and wants to be married and live as a couple. I just received an email asking if I knew where a couple could find #accessible #housing? I think if there is anything out, it will be very limiting, or exspensive since most of it is geared toward individuals.
If there is separation of church and state, why are religious people so against #marriageequality? To me #marriageequality is about legal rights and benefits, so far nobody is asking God to re-write the Bible.
via Marriage Equality for People with Disabilities Some people who don't get the issue have complained about us calling this a fight for marriage equality! Equality is about equal access and any institution that discourages any legal, consensual couple from marrying for any reason is not an institution of equality. Until people with disabilities are not penalized for marrying we will continue our fight for equal access to marriage!
"My mother battled Multiple Sclerosis from the time I was 3 years old to her death 17 years later. Near the end of her struggle, I saw the drastic steps my family had to go through, even with my father's excellent healthcare plan, to get her the medical assistance she needed. A family should not be forced to destitute themselves, sell assets, even contemplate divorce, just to get the care they need. I am proud to sign this petition. I know the solution will not be easy, but policies that tear families apart in their desperate attempt to stay together can not be allowed to continue." - Chris W. Gooley
I woke up yesterday ready for a full day of creativity on my video project. Wifey even made me a nice cup of coffee made with love.
To see how my project was coming along, I exported it as a quick time movie. I did notice it was a huge file compare to the previous exports, but this one had more layer and was longer. So I opened they file and it was dragging and skipping so bad. I try to export it many more times and it was not any better. I even looked up what are the green and blue bars in After Effects, they have to do with RAM to preview/render your video. I started to flip out and getting frustrated that I do not have enough RAM, BUT I HAVE 9 GIGS!!!!
For fours hours, I was changing the RAM settings and it was not helping. So after dinner and snuggling Wifey for a while. I decided to give it another attempt to find the real problem with a free solution. In my search I typed export After Effects drags and whala I found what I was looking for at 11:06pm. The issue was my output settings were set wrong. After watching a clip, it ONLY took 2 clicks to fix the problem!
Do not even get me started about how many papers I lost during my first two years at TU. That was when my laptop double as a communication device “attached” to a try on my chair. I will be rolling across campus and it will fall off crashing to the ground.
